Patients and patient advocacy groups are becoming increasingly involved in individual and politico-scientific decisions surrounding cancer care. EORTC has close relationships with most patient organisations and cancer leagues across Europe. They provide EORTC with precious information and feedback on designing trials and creating documents aimed at informing patients, and also help disseminate information about clinical trial progress.
EORTC also hosts a course designed for patient group leaders to provide high-level cancer patient advocates a much greater understanding of the entire clinical research process, and their role in supporting the design and implementation of successful clinical studies.
By listening to the patient representatives’ perspective, EORTC also hopes to take into account the needs of patient populations in the design of clinical studies and projects.