EORTC’s Anastassia Negrouk speaks out on the EU Data Protection Regulation

Protection of privacy is a serious matter. However, in health research, straightening and narrowing participant’s consent or limiting data storage in time is unlikely to increase the level of protection. On the other hand, these measures would surely jeopardize health research and progress of medical science violating rights on adequate health care and freedom of research.

In an interview appearing in the European Voice, EORTC’s Anastassia Negrouk urges the EU Parliament, Council, and Commission as well as all stakeholders to avoid rushing into any premature consensus as far as health research is concerned before careful consideration of each detail.

The EORTC invites regulators to keep an important level of flexibility in this part of regulation (through delegated act mechanism) to enable its further adaptation to international research, new technologies and needs of science, individuals to be protected and society as whole.

John Bean, PhD
EORTC, Medical Science Writer

Back to news list

Related News

  • Meet the new EORTC Board

  • We are pleased to announce the release of the EORTC 2023 Annual Report

  • Dr Denis Lacombe, EORTC CEO, appointed stakeholder co-chair of ACT EU advisory group

  • Clinical Trials Day 2024: a Q&A on pragmatic clinical trials

  • EORTC/EMA workshop suggests an international way forward for treatment optimisation studies

  • EORTC’s Participation at the ESTRO Congress 2024

  • EORTC: Advancing research and treatment for rare cancers

  • EORTC Fellowship Programme: celebrating more than 20 years of impactful collaboration

  • Appointment of Malte Peters as EORTC Strategic Alliance Officer

  • Unique series of workshops in partnership with the European Medicines Agency (EMA)