Description

EORTC research around Quality of Life aims to:

  • Develop and refine questionnaires to assess patients’ health-related quality of life in oncology clinical trials, other well-designed research studies and clinical practice
  • Collaborate with other EORTC research groups in implementing health-related quality of life studies within their clinical trial programs
  • Conduct research to better understand the effects of cancer and its treatment on the health-related quality of life of diverse populations of patients with cancer, across different cultures.

Professionals from various disciplines, including oncologists, radiotherapists, surgeons, psychiatrists, palliative care specialists, psychologists, social workers and research methodologists are involved in developing disease-specific treatment measurement modules to be administered in addition to the core quality of life questionnaire, the EORTC QLQ-C30. The modules, like the core questionnaire, are designed for use in cancer clinical trials, clinical practice and academic research.

For more information about Quality of Life, contact us.

Main Achievements

EORTC research in Quality of Life has led to the creation of the EORTC Quality of Life Questionnaire, which has become one of the standard tools to measure quality of life in cancer clinical trials. The core questionnaire, currently available in over 100 languages, is accompanied by more than 20 fully-validated modules, addressing disease or population-specific concerns.

Related Projects

SISAQOL : Setting International Standards in Analyzing Patient-Reported Outcomes and Quality of Life endpoints Data for Cancer Clinical Trials

Research Group

Group website
  • Chair

    Fabio Efficace

    GIMEMA Data Center

    Rome, Italy

  • Secretary

    Krzysztof Tomaszewski

    Jagiellonian University Medical College

    Cracow, Poland

  • Treasurer

    Susanne Singer

    Johannes Gutenberg Universitaetskliniken - Mainz University Medical Center

    Mainz, Germany