Quality of Life
Description
EORTC research around Quality of Life aims to:
- Develop and refine questionnaires to assess patients’ health-related quality of life in oncology clinical trials, other well-designed research studies and clinical practice
- Collaborate with other EORTC research groups in implementing health-related quality of life studies within their clinical trial programs
- Conduct research to better understand the effects of cancer and its treatment on the health-related quality of life of diverse populations of patients with cancer, across different cultures.
Professionals from various disciplines, including oncologists, radiotherapists, surgeons, psychiatrists, palliative care specialists, psychologists, social workers and research methodologists are involved in developing disease-specific treatment measurement modules to be administered in addition to the core quality of life questionnaire, the EORTC QLQ-C30. The modules, like the core questionnaire, are designed for use in cancer clinical trials, clinical practice and academic research.
For more information about Quality of Life, contact us.
Recruiting Clinical Trials
All clinical trials in this research field-
Cohort
Follow-up in Gynecological Cancer Survivors: An EORTC QLG-GCG Survivorship Study
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Confirming content validity of the EORTC QLQ-C30
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Phase IV development of the EORTC Quality of Life Module for Patients with Chronic Myeloid Leukemia (EORTC QLQ-CML24)
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Cohort
Development of an EORTC questionnaire for individuals at risk for a Hereditary Cancer Predisposition Syndrome : the EORTC QLQ-HCPSxx
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Adapt the existing EORTC QLQ-GINET21 Module to develop a specific module for use in patients with Pancreatic Neuroendocrine Tumour.
Main Achievements
EORTC research in Quality of Life has led to the creation of the EORTC Quality of Life Questionnaire, which has become one of the standard tools to measure quality of life in cancer clinical trials. The core questionnaire, currently available in over 100 languages, is accompanied by more than 20 fully-validated modules, addressing disease or population-specific concerns.
Related Projects
SISAQOL : Setting International Standards in Analyzing Patient-Reported Outcomes and Quality of Life endpoints Data for Cancer Clinical Trials
Research Group
Group website-
ChairAnne-Sophie Darlington
School of Health Sciences, University of Southampton
Southampton, United Kingdom
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SecretaryKarin Kuljanic
Klinicki Bolnicki Centar Rijeka
Rijeka, Croatia
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TreasurerSusanne Singer
Johannes Gutenberg Universitaetskliniken - Mainz University Medical Center
Mainz, Germany